Collaborative Health Outcomes Information Registry (CHOIR)

Open source framework for developing a patient registry of pain sufferers on a national scale.
Stanford Medicine Systems Neuroscience and Pain Lab

New York City Tri-Institutional Chronic Pain Registry

This project will allow the development of a collaborative research partnership among 4 academic hospital-based, interdisciplinary pain clinics (Hospital for Special Surgery, Weill Cornell NYPH, and Memorial Sloan Kettering) and the Institute for Clinical Outcomes Research (ICOR) at International Severity Information Systems, Inc. (ISIS) to develop a chronic pain registry and apply the state of the art research methodology called Practice-Based Evidence (PBE).

Hospital for Special Surgery Chronic Pain Registry

The Back Pain Outcomes Using Longitudinal Data (BOLD) Project - AHRQ

The overall goal of the BOLD Registry is to establish a sustainable registry to evaluate prospectively the effectiveness, safety, and cost-effectiveness of interventions for patients over age 65 with low back pain.

BOLD project

Medscape article 

Pain Assessment Screening Tool and Outcome Registry (PASTOR) – DoD

PASTOR will incorporate military-specific demographic and diagnostic information to enhance the value of the information for Warrior and Beneficiary pain issues.

UW Medicine: Redefining Pain

NVA Vulvodynia Treatment Outcomes Registry

National Vulvodynia Association

*Note that these registries are provided for information purposes only.  For more information about particular registries, please visit the provided links.

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