Progress on Pain – SHIP-HU Study
September is Pain Awareness Month and Sickle Cell Disease Awareness (SCD) Month. The SHIP-HU Study is an NHLBI-funded research study on SCD that recently published findings about the transition from pediatric to adult SCD care.
Description of video
Slide 1
On a light gray background with three semi-circles in different shades of blue, the phrase “Progress on Pain” with the NIH logo fly onto the screen from the left side. Then, the phrase “The SHIP-H U Study” appears, which stands for the “Start healing in patients with hydroxyurea” study.
Slide 2
These words and objects disappear and are replaced with the phrase: “The information in this video comes from the following published research study.” A citation for the study is provided, which is Sisler and colleagues, 2022. The paper is titles, “Satisfaction and access to care for adults and adolescents with sickle cell disease: ASCQ-Me quality of care and the SHIP-HU Study. It was published in the journal Pediatric Blood & Cancer. The slide notes, “This study was supported through NHLBI IR18HL112737 from the National Heart, Lung, and Blood Institute. The logo for the institute is places at the bottom of the slide.
Slide 3
These words disappear. A circle with a cartoon of round and sickled red blood cells flies in from the left side of the page along with text that says “sickle cell disease (SCD) is a genetic condition that affects a person’s red blood cells. Next, a blue circle with the number “>100,000” and icons of people flies in from the left along with text that says, “More than 100,000 people in the US are diagnosed, including 1 in 365 Black American births.” Finally, an orange circle that radiates out to red flies in from the left along with text that says, “Pain is a key SCD symptom that takes away from quality of life and well-being.”.
Slide 4
The screen changes to a navy-blue background with a large gray circle in the middle. Inside of the circle, the text reads, “SCD is present at birth and continues throughout a person’s life.” Below this text is a cartoon of a Black man across the lifespan, from infancy to older adulthood.
Slide 5
The screen changes to a gray background with a navy-blue large circle in the middle. Inside of the circle, the text reads, “Researchers from the SHIP-HU Study wanted to see if there were any differences in SCD care between youth and adults.”
Slide 6
The screen changes to a gray background. On the top of the screen, text appears that says, “Youth in this study were…”. On the left side of the screen, a cartoon of a Black male youth is pictured within a blue medium-sized circle. Underneath this image, bulleted text shows that the youth in the study were, “15-22 years old (17.9, on average), 38.9% identified as male, 92.6% had SS genotype.” The text at the top changes to read, “Adults in this study were…” and on the right side of the page, a cartoon of an adult Black man appears within a medium-sized blue circle. Underneath this image, bulleted text shows that the adults in the study were, “23+ years old (33.2, on average), 45.4% identified as male, 83.8% had SS genotype.”
Slide 7
The screen changes to a navy-blue background with a large gray circle. In the circle, the text says, “What did the researchers find?”
Slide 8
The screen changes to a gray background. A blue circle flies in from the left of the screen along with text that says, “Higher satisfaction with youth care compared to adult care.” Inside of the circle are the same cartoons of the Black male youth and adult Black man. The word “Satisfaction” is at the top of the circle, with a green plus sign under the youth, indicating greater satisfaction, and a red minus sign is under the adult, indicating worse satisfaction. Another blue circle flies in from the left of the screen along with text that says, “Better access to outpatient and emergency care in youth compared to adult settings.” Inside of the circle are the same cartoons of the Black male youth and adult Black man. The word “Access” is at the top of the circle, with a green plus sign under the youth, indicating greater access, and a red minus sign is under the adult, indicating lower access. A final blue circle flies in from the left of the screen along with text that says, “Findings might be because of differences in youth and adult SCD health care systems.” Inside of the circle is a cartoon image of a hospital.
Slide 9
The screen changes to a navy-blue background with a large gray circle. In the circle, the text says, “These findings mean that, in general, youth reported better quality of SCD care than adults, showing a gap.” Below the text is the same lifespan cartoon. A red line appears between the cartoon youth and cartoon adult in the lifespan cartoon. To the left of the red line is a green arrow that says, “better care.” To the left of the red line is a red arrow that says, “worse care.”
Slide 10
The screen changes to a gray background with a navy-blue large circle in the middle. In the circle, the text says, “The researchers write that SCD care for adults needs improvements, including creating centers of excellence for adults.”